As most of you probably know this is a Daily aspect of my life and like everything I hear I like to learn more about it. For 2 years now I’ve been helping my son and the rest of my family cope with this disability. Education on it has helped tremendously and I find the more people that know of it the better we can all deal with it. Some of the information presented is from my own experience and may not be typical for all people with this disease.
Ok first off what is Asperger’s? This is a genetic neurological condition where the brain is wired differently. It is classified in the Autism Spectrum Disorder (ASD) and treated in much the same way.
People with this condition generally perceive the world in a unique way. They have difficulty with social interaction and default to stereotypical patterns of behaviour to compensate for an overwhelming amount of information their brain is dealing with.
Usually is it diagnosed in children by the symptoms of atypical and delayed speech, lack of nonverbal communication skills, failure to demonstrate empathy, and physical clumsiness. What this really means is they will speak later in childhood and use words or groups of words in a different manner then typical. Usually the person with aspergers has trouble maintaining eye contact and cannot stay still while in a conversation. My Son trips over his shadow and falls of chairs from wiggling too much.
This does NOT make someone with Aspergers mentally disabled. They may think and talk differently but their level of knowledge can actually exceed that of typical people. This may have to do with the tendency to be fixated on a subject. As they age the restriction becomes more and more complex making them border on genius for that subject.
People with Aspergers find comfort in restricted and repetitive behaviour. Routine is key for them and they will not know how to deal with sudden changes. When in an uncomfortable social environment they may tend to fall on their fixated restricted subject as THE only topic of conversation.
It is also speculated that ASD may be due to heightened senses. People in the spectrum often notice things others don’t. They may also hear and feel differently. Our son often has to cover his ears in strong winds as the noise is an overload. His clothing must be long sleeve cotton or he’ll break out in a rash. He points out things in everyday life we take for granted and may not have noticed. It is a pure joy to try and see the world from his point of view. A very fresh perspective.
Some of the things we do to help him is to enhance his cognitive behaviours to improve his stress management and relieve anxiety by distracting him with other visual and tactile stimuli. Generally this is some toy he has with him that can calm him and help him focus.
We sees an occupational therapist to help build social stories and deal with situations. They work on sensory integration of these situations to deal with preparing for an experience. We also work on fine motor skills as dealing with details is a focused battle. Printing is a chore that requires tremendous effort but his ideas are brilliant if he can put them down.
I wouldn’t even want to cure him as that is personality. As I said his perspective is a joy even if his (and our) stress is increased. Life isn’t all about being normal and in a way we all have a bit of aspergers in us.
One final note I’d like to make is a reminder that this is a genetic disorder. Anytime you see Jenny McCarthy on TV talking about it yell at her that she’s full of poo and turn the channel. By no means is she any kind of expert in anything.
Side Note: wordpress spellchecker doesn’t even know Aspergers exists.
5 Comments
Love your choice of subject Morvis. And yes they are very special these children, a lot of hard work and stress sometimes frustration. But the joy they give you in return when you least expect it it just priceless. Unfortunately it is like with anything different, most are scared of it and try to ignore or hide from it. Sad really, if people only new what they where missing out on, they wouldn’t be so judgmental about ASD. Our youngest didn’t fit in that box, global developmental delay they called his disability.
But I agree with you, we all have tendencies to autism, even though they are very mild, and no one will of course admit it.
In our case, the first five years was extremely exhausting for me as he refused any help from anyone else. The main problem is that most think they can “treat” or raise these children as other children, which is impossible. It always back fires on you. Bless these little sparks who are different and teaches us a new way of looking at life and the world.
Again, well done my friend, like to hear more on this.
My friend, as a parent of a child who has ADHD and ECD I do realize the hardship and heart break you and your spouse endure every day. No matter how much pain I was in and anger I would feel over the whole situation, it always melted away when Bradon would look up at me and say “Daddy”. Its is always at that point you know why you were chosen to be the parent of a special child. We don’t look for the blame we look for the joy that only that special bond between a parent and child brings. There is so much mis-information on these genetic problems that it will probably always be an uphill battle but we endure because of just who we are, we are parents of gifted children. One day I hope GINA will find the answers but untill then
The band plays on….
I have been curious about Aspergers. I have seen diagnosed children and believe someone in my family has not been diagnosed. I had a feeling that it is genetic because often more that one child in a family is autistic. Does the age of the parents matter?
Great questions Karen. I have 3 kids and only my middle son has Aspergers diagnosis. There are also documented cases of several siblings in the same family with ASD. Since this is a genetic disorder it is the luck of the DNA that determines the neural make up. More study is required but you may think of it like other enherited traits. If both parents have blue eyes the likelyhood of the child having blue eyes is increased. Similar for autism if both parents have it in the family then it increases the chance of occurance. Hope that helps you and feel free to ask more questions.
Great blog morvis. I have been touched by these lovley children and am sad at the way society can outcast them because they are not “normal” I find it hard enough to deal with children who have a list a mile long of food allergies(including the scary one nuts)caring for a special needs child takes a special person and you and narscheska are definatly that. I wish more people could open up their minds and hearts towards these lovely gifts given to us.
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